organizations & SUPPORT GROUPS

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Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD)
8181 Professional Place
Suite 221
Landover, MD 20785
Phone: 301.306.7070
Email: national@chadd.org

CHADD is a non-profit parent-based organiztion formed to better the lives of individuals with attention deficit disorder and those who care for them.

 20 Eglinton Avenue W.
Suite 1200
Toronto, Ontario M4R 1K8
Canada
Phone: 416.488.8772
Toll Free: 1.800.616.8816 (valid only in Canada)
Email: webmaster@alzheimer.ca 

Here you'll find information on the Alzheimer Society, the disease, care, research, news, events, and more.  

ALS Association
27001 Agoura Road
Suite 150
Calabasas Hills, CA 91301-5104 

 Phone: 888.949.2577
Email: carols@alsa-national.org 

The ALS Association is the only national not-for-profit voluntary health organization dedicated solely to the fight against amyotrophic lateral sclerosis (often called Lou Gehrig's disease).

Alzheimer Society
20 Eglinton Avenue W.
Suite 1200
Toronto, Ontario M4R 1K8
Canada

Phone: 416.488.8772
Toll Free: 1.800.616.8816 (valid only in Canada)
Email: webmaster@alzheimer.ca 

Here you'll find information on the Alzheimer Society, the disease, care, research, news, events, and more. 

Alzheimer's Association
National Headquarters
919 N. Michigan Avenue
Suite 1000
Chicago, IL 60611-1676
Phone: 312.335.8700
Toll Free: 800.272.3900

Dedicated to researching the prevention, cures, and treatments of Alzheimer's disease nationwide. 

Alzheimer's Disease Education and Referral (ADEAR Center)
P.O. Box 8250
Silver Springs, MD 20907-8250
Phone: 800.438.4380
Email: adear@alzheimers.org

This site provides information on Alzheimer's disease research, diagnosis, treatment, drugs, clinical trials, and Federal Government programs and resources. The ADEAR Center is a service of the National Institute on Aging (NIA). The NIA is one of the National Institutes of Health under the U.S. Department of Health and Human Services. 

Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
Phone: 415.434.3388
Fax: 415.434.3508
Email: info@caregiver.org

Welcome to the website for Family Caregiver Alliance, the premier support organization for caregivers. Here you'll find specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS, and other disorders and long-term care concerns. Our site has wonderful features for families,caregivers, professionals, policy makers, and the media. 

  National Aphasia Association
156 5th Avenue
Suite 707
New York, NY 10010
Phone: 800.922.4622

The National Aphasia Association is an organization dedicated to promoting the care, welfare, and rehabilitation of those with aphasia through public education and support of research. The mission of the NAA is to stimulate the development and utilization of resources to help meet the needs of people with aphasia and their families. 

The Arc of the United States
(formerly Association for Retarded Citizens of the United States)
500 East Border Street, Suite 300
Arlington, TX 76010
Voice: 817.261.6003
Fax: 817.277.3491
TDD: 817.277.0553

Email: thearc@metronet.com

The Arc is the country's largest voluntary organization committed to the welfare of all children and adults with mental retardation and their families. 

United States Cerebral Palsy Athletic Association Home
25 W. Independence Way
Kingston, RI 02881
Email: uscpaa@mail.bbsnet.com
Phone: 401.874.7465

Our overall purpose is designed to provide both individualized sports training and competitive opportunities for athletes with cerebral palsy, or other related challenges, such as traumatic brain injuries or strokes. 

Dystonia Medical Research Foundation (DMRF)
One East Wacker Drive, Suite 2430
Chicago, IL 60601-2001
Toll Free: 800.377.DYST

 Phone: 312.755.0198
Email: dystonia @dystonia-foundation.org 

The Epilepsy Foundation®
(formerly the Epilepsy Foundation of America)
4351 Garden City Drive
Landover, MD 20785
Local Phone: 301.459.3700
Toll Free: 800.EFA.1000
Fax: 301.577.4941
TTY: 800.332.2070
Email: webmaster@efa.org

This is a national organization that works for people affected by seizures through research, education, advocacy, and service. 

Guillain-Barre´ Syndrome Foundation International
P.O. Box 262
Wynnewood, PA 19096
Phone: 610.667.0131
Fax: 610.667.7036
Email: gbint@ix.netcom.com

Available services include the following: 

• Visits to patients by recovered persons 
• Comprehensive booklet, "GBS, An Overview for the Layperson"      
• Poster, announcing services 
• Patient assistance by local chapters 
• List of chapters worldwide 
• Newsletter 
• Research funding 
• International Educational Symposia for the medical community and general public 

American Council for Headache Education (ACHE)
19 Mantua Road
Mt. Royal, NJ 08061
Phone: 856.423.0258
Fax: 856.423.0082
Email: achehq@talley.com 

The American Council for Headache Education (ACHE) is a nonprofit patient-health professional partnership dedicated to advancing the treatment and management of headache. Our goals are to empower headache sufferers through education, and to support them by educating their families, employers, and the public in general. We advocate individualized treatments, which combine the best of traditional medicine, alternative medicine, drug, and non-drug therapies. 

National Headache Foundation
428 W. St. James Place, 2nd Floor
Chicago, IL 60614-2750
Toll Free: 1.888.NHF.5552
Phone: 312.388.6399

Our World Wide Web Headache Information Center offers membership availability, topic sheets for specific headache conditions, a list of educational materials for purchase, information about headache support groups, sample articles from the NHF Head Lines, and our award-winning bi-monthly newsletter. 

Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
Phone: 415.434.3388
Fax: 415.434.3508
Email: info@caregiver.org

Welcome to the website for Family Caregiver Alliance, the premier support organization for caregivers. Here you'll find specialized information on Alzheimer's disease, stroke, traumatic brain injury, Parkinson's disease, ALS, and other disorders and long-term care concerns. Our site has wonderful features for families, caregivers, professionals, policy makers, and the media. 

Huntington's Disease Society of America
158 West 29th Street, 7th Floor
New York, NY 10001-5300
Phone: 212.242.1968
Toll Free HD Information Line: 1.800.345.HDSA
Email: sarcher@hdsa.org

HDSA's mission is to: 

• Promote and support research to find a cure for HD 
• Help those affected by the disease and their families 
• Educate the public and health care professionals about HD 

Charcot-Marie-Tooth Association
2700 Chestnut Street
Chester, PA 19013-4867
Phone: 610.499.9264
610.499.9265
Toll Free: 1.800.606.CMTA (2682)
Fax: 610.499.9267
Email: CMTAssoc@aol.com

The CMTA is a nonprofit organization founded in 1983 whose goals are patient support, public education, promotion of research, and ultimately the treatment and cure of CMT. 

The Neuropathy Association
60 E. 42nd Street, Suite 942
New York, NY 10165
Phone: 212.692.0662
Email: info@neuropathy.org

The Neuropathy Association is a public, nonprofit organization which was established by people with neuropathy and their families or friends to help those who suffer from disorders that affect the peripheral nerves. 

Obsessive-Compulsive Foundation (OCF)
337 Notch Hill Road
North Branford, CT 06471
Phone: 203.315.2190
Fax: 203.315.2196
Email: info@ocfoundation.org

OCF funds research, conducts annual membership conferences, publishes a bi-monthly newsletters, provides a free inquiry packet with information on treatment providers, support groups, and other materials. 

National Foundation for the Treatment of Pain
1330 Skyline Drive, Suite 21
Monterey, CA 93940
Phone: 831.655.8812
Fax: 831.655.2823 

The National Foundation for the Treatment of Pain is a not-for-profit organization dedicated to providing support for patients who are suffering from intractable pain, their families, friends and the physicians who treat them. 

American Chronic Pain Association, Inc. (ACPA)
P.O. Box 850
Rocklin, CA 95677
Phone: 916.632.0922
Fax: 916.632.3208
Email: ACPA@pacbell.net
ACPA Mission Statement:

•  To facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain.
• To raise awareness about issues of living with chronic pain among the health care community, policy makers, and the public at large. 

Miami Project to Cure Paralysis

www.miamiproj.med.Miami.edu 

American Parkinson Disease Association
1250 Hylan Boulevard, Suite 4B
Staten Island, NY 10305
Toll Free: 800.223.2732
Phone: 718.981.8001
Email: info@apdaparkinson.com

National Parkinson Foundation, Inc.
1501 NW 9th Avenue
Bob Hope Road
Miami, FL 33136-1494
Toll Free: 800.327.4545
Fax: 305.548.4403
Email: mailbox@npf.med.miami.edu

The organization supports research; conducts clinical trials; and provides physical, occupational, speech, and neuropsychological therapies. Learn about Parkinson's disease-related news and events. The online library also holds publications and articles. 

Parkinson's Disease Foundation
710 West 168th Street
New York, NY 10032-9982
Toll Free: 800.457.6676
Phone: 212.923.4700
Email: info@pdf.org
Educational Office (312)733-1893

The Foundation provides information about Parkinson's disease itself as well as related organizations, research centers, and events. You can also read the latest Parkinson's news or join the online email list. 

Parkinson's Action Network
840 Third Street
Santa Rosa, CA 95404
Toll Free: 800.850.4726
Phone: 707.544.1994
Fax: 707.544.2363
Email: info@parkinsonsaction.org

The Parkinson's Action Network was founded in 1991 with a mission to provide a voice for the Parkinson's community. Since that time, the Network's central objective continues to be to promote a level of research support sufficient to produce effective treatments and a cure. 

 Society for Progressive Supranuclear Palsy, Inc. (SPSP)
Suite 515, Woodholme Medical Building
1838 Greene Tree Road
Baltimore, MD 21208
800.457.4777
Fax: 410.486.4283
Email: spsp@erols.com

The goal of this website is to bring current information on progressive supranuclear palsy (PSP) to persons with PSP, their families, and their caregivers. 

International Essential Tremor Foundation
7046 W. 105th Street
Overland Park, KS 66212-1803
Phone: 913.341.3880
Fax: 913.341.1296
Email: IntTremorFnd@worldnet.att.net 

Trigeminal Neuralgia Association (TNA)
P.O. Box 340
Barnegat Light, NJ 08006
Phone: 904.779.0333
Fax: 904.779.7681
Email: Tnainfo@aol.com

TNA is a nonprofit, tax-exempt organization founded in 1990 by individuals who had been directly affected by the pain of trigeminal neuralgia, as patients or as family members of a patient. 

American Academy of Neurology
1080 Montreal Avenue
St. Paul, MN 55116
Phone: 651.695.1940
Email: wen@ann.com

Dana Alliance (CharlesA. Dana Fund)
745 Fifth Avenue, Suite 700
New York, NY 10151
Email: dabiinfo@dana.org

The Charles Dana Foundation / The Dana Alliance for Brain Initiatives At this site you will find extensive information about the programs, activities, and publications of the Dana Foundation and the Dana Alliance, as well as material of interest to any one concerned about brain diseases and disorders and about innovative reforms that strengthen early education. 

National Institute of Neurological Disorders and Stroke
National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892

Patients, clinicians, and scientists can check this site for information on Alzheimer's as well as other neurological diseases. Browse online publications and link to other health organizations and governmental agencies. 

The National Rehabilitation Information Center
Serving the Nation's Disability Community (NARIC)
1010 Wayne Avenue, Suite 800
Silver Spring, MD 20910
Toll Free: 800.346.2742 (V)
Phone: 301.562.2400 (V)
301.495.5626 (TT)
Fax: 301.562.2401

One of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the Internet. NARIC's literature collection, which also includes commercially published books, journal articles, and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.

National Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
Phone: 202.205.8134
TTY: 202.205.9433

(NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment, and independent living of disabled individuals of all ages. Are your customers raving about you on social media? Share their great stories to help turn potential customers into loyal ones.

• Please be informed that any medical information on this site is provided only for educational purposes and is not meant to take the place of a medical consultation or evaluation.
• All information for patient links and support groups are subject to change.  Updates will be made if new information is provided to our office.  If you note a change in any of this material, please report it to the Chicago Neuroscience Institute.  Please update our medical facility if you are aware of any additional informational links or support groups that may be beneficial to our paints that we serve.   

                                  HOPE THAT THIS INFORMATION HAS BEEN HELPFUL FOR YOUR NEEDS!